Dear Friends and Visitors to our web site,
Latest news.
I've a Christian chum who's a Doc and he has been e mailing me some very helpful info.
One sentence that he sent me really brought things down to earth...I'm sure all of you that are involved / have been involved with chemotherapy will agree.
'Chemo is really just a sophisticated type of poison designed to knock off cancer cells before they knock off you, but poison just the same.'
I know it's completely out of context but it does remind me of Mark 16 v 18 ' And when believers drink deadly poison, it will not hurt them at all' which maybe true of the chemo...but certainly not true of those rotten side effects !
Recently I got back from Doc's and Praise God, my new blood is doing very well.
In fact I am doing so well, they have upped my weekly dose of chemo tablets to 33. Lovely.
My consultant insists that the side effects (see below) are not caused by the tablets that I am having now, but I am still being affected by the very heavy doses I had beforehand. This is good news because hopefully these side effects will gradually wear off.
On side effects 7 and 8 my consultant told me that this is quite normal for someone who has come through a 'near death' experience. It's psychological and still somewhere at the back of my mind lies the thought that I may die.
A sort of depression.
I was encouraged to hear that all this will change when my life starts getting back to normal and I get back and do a bit of work. Thank goodness for that !
Roll on January. I need to get those Praise Parties going again !
To help with your praying I’ve listed an update of the side effects that I am having at this time.
1) Day and night indigestion problems.
2) Toe and finger nails very weak.
3) Dry skin and very itchy.
4) Hearing reasonable, but I now have to wear at least one hearing aid all the time.
5) Nausea and bad taste in my mouth throughout the day. Can be temporarily overcome by chewing gum and eating food. Food and drink usually taste odd. Worst nausea and bad taste starts late afternoon and keeps going throughout evening.
6) Mornings I’m usually fine but most afternoons I’m tired and fatigued. I’m very tempted to have a sleep but when I do, I find it so hard to wake up again, and feel grotty when I do. I now am resisting the temptation to sleep and try and stay awake all day.
7) Difficult to get excited about anything, hard to be creative.
8) Concentration not very good…but I’m unsure if it ever was !
Original news.
By now you may have heard that I was diagnosed with acute myeloid leukaemia on Monday 7th April 2008.
I am hoping and believing that my recovery will come gradually in 3 stages. I am now into stage 2.
Stage 1 April 2008 - August 2008:
Hospitalisation: involved treatment of 14 intensive chemotherapy injections divided into 4 courses plus transfusions and courses of the anti-cancer drug ATRA.
Stage 2 August 2008-December 2008:
Remission, convalescence and treatment as a hospital out-patient with regular monitoring through blood tests. This does involve a massive amount of pills. I have to take 126 ATRA pills over a 14 day period repeated every 3 months. When not on ATRA I will be taking daily chemotherapy pills 2 one day, 3 the next and an extra 8 each Wednesday. I will have to take 1 Allopurinol pill each day for the rest of my life to stop the gout. The side effects so far are fatigue, tiredness, nausea, soft nails, dry lips and itchy dry skin. During this period I am managing to do a small amount of preaching, teaching and music ministry but keeping fairly local.
Stage 3 January 1st 2009 – September 2010:
Continued remission but getting back to normal. I will start doing a limited amount of distance travel and recommence my music/teaching engagements. I am really looking forward to getting back and doing some Praise Parties. Continued hospital monitoring and continued daily chemotherapy pills plus the 3 monthly ATRA pills as mentioned in Stage 2.
Late 2010 (Maybe before):
Hopefully given the all clear, stop the chemotherapy and ATRA pills and hear the word cured!
I praise God for the speed of my recovery so far and give thanks for the consultants, nursing staff, medical science, prayer from Christians all over the world and of course for my wife Irene, our children, family, cathedral clergy and congregation and our close friends.
You will probably never realise just how much your love and support has meant to us as a family. We have been overwhelmed by your wonderful messages, prayers and practical giving. You have carried us through the darkest time of our lives.
Please be assured, your prayers are being answered although I realise that I still have a long way to travel on my cancer journey. I am convinced that a miracle is happening and I am so pleased to still be alive and I am assured that God still has more for me to do yet!
Part of the treatment is maintaining a positive attitude so if you would like to continue sending messages please use the following email address:
getwellsoon@ishmael.org.uk
If you would like to continue supporting us in prayer, updates will be put on the Daily News Section along with other news.
Until late 2010, because I will be continuing to be on chemotherapy and ATRA tablets I will only be doing just a limited amount of travelling ministry and I will not be charging for any ministry that I do.
It will just be a joy to be well enough to visit Churches again and hopefully be a small blessing to others.
If you feel that you as an individual or your Church would like to offer further practical support then please either contact me direct or see the Jeff Lucas section further down the homepage.